Skip to main content
Part of complete coverage on

My life with schizophrenia

By Elyn Saks, Special to CNN
updated 10:56 AM EDT, Sun August 12, 2012
STORY HIGHLIGHTS
  • Elyn Saks' career as a law student was halted by schizophrenia
  • She was institutionalized and doctors said she would at best hold a menial job
  • Saks became a law professor, "genius grant" winner and author
  • She says she continues to cope with illness and urges people to overcome stigma

Editor's note: Elyn Saks is a professor of law, psychology and psychiatry at USC Gould School of Law, a MacArthur Foundation fellowship winner and the author of "The Center Cannot Hold: My Journey Through Madness" (Hyperion, 2007). She spoke at the TEDGlobal conference in Edinburgh, UK, in June. TED is a nonprofit dedicated to "Ideas worth spreading," which it makes available through talks posted on its website.

(CNN) -- I am a woman with chronic schizophrenia. I have spent hundreds of days in psychiatric hospitals. I could have ended up living most of my life on a back ward, but things turned out quite differently.

In fact, I've managed to stay free of hospitals for almost 30 years. This is perhaps my proudest accomplishment. That doesn't mean that I have been free of all psychiatric struggles. For example, on my analyst's announcing his planned retirement, I fell apart. My best friend, Steve Behnke, sensed that something was terribly wrong, and he came to New Haven, Connecticut, to see me.

Quoting from some writings of mine:

A tale of mental illness from the inside

"I opened the door of my studio apartment. Steve would later tell me that for all the times he had seen me psychotic, what he saw that afternoon shocked him. For a week or more I had barely eaten. I was gaunt, and moved as though my legs were wooden. My face looked (and felt) like a mask. I'd pulled down all the shades, so the apartment was in near total darkness, the air fetid, the place a shambles. Steve, a lawyer and psychologist, has worked with many patients who suffer from severe mental illness. To this day he'll tell me that on that afternoon I looked as bad as any he'd ever seen.

"'Hi,' I said, then returned to the couch, where I was silent for several minutes. 'Thank you for coming, Steve,' I finally said. 'Crumbling world. Word. Voice. Tell the clocks to stop. Time is time has come.'

... 'I'm being pushed into a grave, the situation is grave,' I moaned. 'Gravity is pulling me down. Tell them to get away. I'm scared. I'm scared.'"

Watch Elyn Saks' TED Talk

***

As a young woman, I was in psychiatric hospitals for three lengthy stays. Despite my diagnosis with schizophrenia and my "grave prognosis" -- that I would live in a board and care facility and work at a menial job at best -- I am a chaired professor of law at the University of Southern California in Los Angeles, with a beloved husband, Will, and many good friends. I'd like to tell you how that happened and describe my experience of being psychotic. I qualify that by saying my experience, because everyone becomes psychotic in his or her own way.

One Friday night on the roof of the Yale Law School library I scared my classmates with a full-blown psychotic episode.

Quoting from my writings:

"The next morning, I went to my professor's office to ask for an extension, and began gibbering unintelligibly as I had the night before. He eventually brought me to the Emergency Room.

"Someone I'll call just 'The Doctor,' and his whole team of goons swooped down, grabbed me, lifted me out of the chair and slammed me down on a nearby bed with such force that I saw stars. Then they bound both my legs and arms to the metal bed, with thick leather straps.

"A sound came out of my mouth that I'd never heard before. Half-groan, half-scream, barely human, and pure terror. Then the sound came again, forced from somewhere deep inside my belly and scraping my throat raw."

TED.com: Sherwin Nuland on how electroshock therapy changed him

This incident resulted in my involuntary hospitalization. One reason the doctors gave for holding me against my will was that I was gravely disabled. Supporting this view, they wrote in my chart that I was not able to do my Yale Law School homework. I wonder what that meant for most of the rest of New Haven.

During the next year, I would spend five months in psychiatric hospitals on the East Coast. At times, I spent up to 20 hours a day in restraints -- hands tied, hands and feet tied down, hands and feet tied down with a net tied tightly across my chest. I never struck anyone, I never harmed anyone, I never made any direct threats to anyone.

I was lucky I wasn't one of the one to three people who die in restraints each week.

Today, I am pro-psychiatry and anti-force. I don't think force is effective as a treatment. And I think using force is a terrible thing to do to another human being with a terrible illness.

***

Everything about my illness says that I shouldn't be here. But I am. And I am, I think, for three reasons. First, I've had excellent treatment, both psychoanalytic psychotherapy and medication. Second, I have many family members and close friends who know me and who know my illness. Third, USC Law School is an enormously supportive workplace which has been able not just to accommodate my needs, but to embrace my needs.

Even with all of that -- excellent treatment, wonderful friends and family, enormously supportive work environment -- I did not make my illness public until relatively late in my life. And that's because the stigma against mental illness is so powerful that I didn't feel safe with people knowing. If you hear nothing else today, please hear that there are not schizophrenics, there are people with schizophrenia. And each of these people may be a parent, may be your sibling, may be your neighbor, may be your colleague.

TED.com: Jill Bolte Taylor's stroke of insight

***

I often get asked the "magic pill" question: Would I take a pill that would instantly cure me? The answer is a fast and emphatic "yes."

That said, I don't wish to be seen as regretting the life I could have had if I'd not been ill. Nor am I asking anyone for their pity. What I rather wish to say is that the humanity we all share is more important than the mental illness we may not.

What those of us who suffer with mental illness want is what everyone wants: in the words of Sigmund Freud, to work and to love.

Follow @CNNOpinion on Twitter.

Join us at Facebook/CNNOpinion.

The opinions expressed in this commentary are solely those of Elyn Saks.

ADVERTISEMENT
Part of complete coverage on
updated 8:42 AM EDT, Wed May 22, 2013
Peter Bergen says there's a great deal of misinformation about the counterterrorism policies President Obama will address in a speech Thursday.
updated 8:47 AM EDT, Wed May 22, 2013
Two decades ago, Joshua Prager was one of more than 20 people in a terrible bus crash. The author revisits the scene to see how others have made sense of the event.
updated 4:20 PM EDT, Wed May 22, 2013
Joshua Wurman says tornado deaths can be reduced, prediction and preparedness can be improved, but it's up to individuals to make sure they heed warnings and have a safe place to go.
updated 10:57 AM EDT, Wed May 22, 2013
Ruben Navarette says under Obama, a record number of immigrants have been deported. So why is his drive for immigration reform now in conflict with enforcement officials?
updated 9:34 AM EDT, Wed May 22, 2013
Nathan Gunter says Okies have learned to love the big sky, but also to watch it carefully for signs of trouble: When the sky betrays us, we cope by helping one another.
updated 9:33 AM EDT, Wed May 22, 2013
LZ Granderson says the heroics of teachers who shielded kids in the Oklahoma tornado remind us of what they do for our country
updated 7:26 AM EDT, Wed May 22, 2013
Tornado researcher Louis Wicker says progress is being made on understanding and predicting extreme storms, but if you hear a warning, take cover immediately
updated 7:29 AM EDT, Tue May 21, 2013
The masked henchmen grabbed three fingers on each of the Syrian political cartoonist's hands and pulled them back all the way -- so far that they cracked.
updated 11:22 AM EDT, Mon May 20, 2013
Meg Urry says loss of the failing, planet-finding Kepler satellite would be huge for NASA--but one way or another, it's a matter of time before we find signs of life on other worlds
updated 12:21 PM EDT, Tue May 21, 2013
Yahoo isn't buying a technology company so much as the community that uses it, Douglas Rushkoff says
updated 11:15 AM EDT, Tue May 21, 2013
Joseph Nye says it's far too early to write off the rest of the president's second term because of the IRS controversy, other issues
updated 7:32 AM EDT, Mon May 20, 2013
Elizabeth Dunn and Michael Norton write that people pass up opportunities to spend their money to avoid disagreeable tasks
updated 9:45 AM EDT, Sun May 19, 2013
Bob Greene on how 18th century Americans tried to make sense of the day with no sun
updated 8:57 PM EDT, Fri May 17, 2013
With guest Rep. Keith Ellison, John Avlon, Margaret Hoover and Dean Obeidallah discuss the president's scandal trifecta, hope for immigration and what Jolie's revelation means for women.
updated 1:09 PM EDT, Fri May 17, 2013
The press has turned on President Obama with a vengeance, writes Howard Kurtz
updated 2:01 PM EDT, Sat May 18, 2013
Donna Brazile says our democracy is endangered, not by the Russians, North Korea, Iran or even terrorists. To quote Pogo: "We have met the enemy and he is us."
updated 1:59 PM EDT, Sat May 18, 2013
Photographer Arne Svenson defends his show "Neighbors," portraits of the occupants of a building near him taken through their windows.
updated 9:37 AM EDT, Mon May 20, 2013
Theater critic Kevin Williamson was kicked out of a play when he took the phone away from an audience member and threw it. He says it was worth it.
updated 10:25 AM EDT, Sat May 18, 2013
U.S. actor Angelina Jolie (L) holds daughter Zahara as husband and actor Brad Pitt (C) carries son Maddox during a stroll on the seafront promenade at the historic Gateway of India outside their hotel in Mumbai on November 12, 2006.
Gil Welch says women must not panic over Angelina Jolie's mastectomies: 99% of women don't carry the BRCA1 gene.
updated 4:52 AM EDT, Sat May 18, 2013
JR's "Inside Out" project brings public spaces alive with giant representations of people
updated 3:22 PM EDT, Fri May 17, 2013
Roger Colinvaux says the IRS scandal is fundamentally about disclosure of donors, not tax-exempt status.
updated 11:14 AM EDT, Thu May 16, 2013
Maia Goodell says the military should use civil legal remedies on sexual assault cases.
ADVERTISEMENT